When
Christopher Columbus landed in the Bahamas and Hispaniola in 1492 he was
absolutely convinced he had reached India or thereabouts, the Indies he called
it.(Became West Indies) He didn’t know about the Pacific Ocean and apparently was bad a math, having
determined that he had travelled the correct number of miles to reach the
Indies. Others, better at math knew he was wrong. He landed in the Bahamas and was convinced he was in the old
world. He completed a total of
4 voyages to the Americas, still trying to convince King Ferdinand that
he would bring back the riches of Asia. He was convinced the world had a circumference
of 17,000 miles instead of the correct 25,000 miles. He believed what he wanted to
believe, irrespective of clear facts. Human nature has not changed. When
investigators have strongly held pre-existing beliefs they take the evidence and fold it into their model. This remains a great human failing. Einstein
understood that facts and knowledge were limiting, as he often said, it is imagination that opens up vast possibilities.
In 2007,
Fallon shows in a highly esteemed, NIH sponsored, peer reviewed study, that
patients with post treatment Lyme with neuroborreliosis achieved improvements
in cognition with a course of intravenous Rocephin and that the gains
disappeared after less than 6 months when treatment was withdrawn. The IDSA somehow concludes that these
findings refute the presence of Lyme persistence after treatment. These folks are smarter than that. If they are right, and antibiotics make
people smarter (not by killing germs) then I certainly want to get my hands on
some!
Chronic Lyme
is it real. Do organisms persist after treatment? This question is settled. Borrelia
burgdorferi bacteria persist in mice, dogs, primates, test tubes and people. No
one has demonstrated eradication of organisms in any of the animal studies. And
it was really very hard to kill all the bacteria in a test tube, requiring 3
very potent drugs. I agree that the vast majority of bugs are gone after a
reasonable course of antibiotics. I don’t
know why some patients need to be on IV antibiotics for many months to achieve
improvements. The collective, empiric
experience, of many doctors and many patients is that these very aggressive
therapies are at times what it takes. Elite colleagues are quick to deny a patient
therapy because it shouldn’t work according to their particular theory. We
became doctors to help patients, not to push dogma. Investigators, trying to
prove a square is a wheel, over and over again, waste a lot of energy and
resources, when they could be searching for real answers.
We live in a
time where a functional MRI – I learn today, can be used to show whether a
young person has suicidal thoughts with accuracy. We have unbelievable medical
and scientific technology, yet we are antediluvian when it comes to Lyme disease.
Those who pull the levers of power are incredibly stubborn, like Columbus, who
was sure he had circumnavigated the globe when he bumped into the Americas.
Is there
something inherently wrong with doctors, as a whole – ID doctors in particular?
I have heard
the same story a million times. Patients tell me, “I told my doctor I was
feeling better when I was on the antibiotics but symptoms came back when the
antibiotic was stopped.” My doctor said, “I’m not going to give you any more
antibiotics.” No reason given. You would
think the patient is asking for heroin. Why don’t doctors listen to their
patients, why don’t doctors trust their patients, why don’t doctors believe in
their patients and why don’t they respect their patients?
There are
several reasons. Here is an off the wall theory: Doctors are imbued with prejudice against
their patients stemming from the way doctors are trained.
When I was
an intern, we all read the book “The House of God.” A satiric look at a medical
internship. Much of what one might read
in that book is closer to the truth than one would ever want to believe.
These are ancient memories and I hope they are outdated.
Medical
students frequently have first patient contact experiences with the sickest of
the sick, including many suffering souls in the final days and hours of their
lives. Mentors and attending instructors
objectify patients, a defense mechanism. The attending physician might
recommend: take a look my liver in 202, the yellow man with esophageal varices,
interesting case; or my lung cancer in 204 with Pancoast tumor syndrome, a must
see. You really don’t want to every be
an “interesting case.” Impersonal, groups of young doctors, wearing white coats
of varying lengths, round on hospital patients, poking and prodding. These
teams of doctors in training provide hospital care for groups of patients
called their “service” New admissions frequently are via the emergency room and
are referred to as “hits.” Patients suffering with dementia and other
debilitating chronic illnesses earn the awful name: GOMER (get out of my
emergency room). An obtunded patient’s
mouth is open and the residents/interns call it an “O sign.” If the tongue is
also protruding to the side it’s called a “Q sign.” The upper level residents
think this is all very cute and very funny. I heard skid row alcoholics in DTs called
SHPOS -- Sub-human-piece-of-s. The new
world of medical learning exists in its own space, with its own rules and
cultural norms. These awful things and
many others were routine in my experience and were normalized. The mentality
was frequently modeled by mentors of the new batch of doctors.
An exhausted
intern, having worked straight since 7am the day before, finally lays down on
his bunk and puts his feet up, shoes on, and hears words through the public-address
system he dreads: “Code Blue ER.” If the patient survives he will admit the
patient to the ICU/CCU. That beyond
exhausted medical resident secretly hopes this one doesn’t make it, so he can
get that one hour of sleep.
These were formative experiences.
I am
absolutely sure many colleagues will deny ever experiencing anything remotely
like what I describe above. Perhaps their experiences were different. Perhaps they have selective memories.
If so, the
question remains: why are these intelligent, highly trained physicians, disrespectful,
arrogant and condescending to their patient who is simply asking the question?
“Why can’t I have more antibiotics?”
As I stated. I have not done any research.
It’s just a theory.
1 comment:
you hit on some VERY good points. I personally think it takes viewing all people as valuable and eternal to be able to give them the loving care that they need. It is amazing how many people down another to raise themselves up. (all subconsciously of course) The ironic part is that you could easily be that very person you are making fun of... or not helping... or despising...
A true Dr. is one that shows compassion to anything that breathes and can feel. Otherwise, is merely a person in desperate need of God.
This whole Lyme war has become more about personal pride and money. Very sad, when you consider the fact that we are all dying and headed for eternity. Very fast too I might add.
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