Two new patients this morning.
1) 24 year old male diagnosed with Post-Lyme syndrome. He is CDC positive for Lyme. He suffers with headache, stiff neck, chest discomfort, TMJ, anxiety, depression, floaters, joint pains- knees, hands, feet, facial tics, sleep disorder, trouble concentrating, muscle pains, urinary symptoms, numbness and tingling, poor balance and disorientation. He is barely holding together. He has a history of "spider bites" and rash. His neurological exam is highly abnormal. He has already seen a dozen doctors, including the best. He has been told that there is nothing to be done. Sorry. Only the internet led him to my door.
2) The second patient is a 30 year old female. She is also CDC positive for Lyme. She has disabling symptoms. Headaches and generalized pains are unbearable, even on narcotics. She can't walk. She can't work or care for her children. She suffers with swollen glands, night sweats, weakness of the left side of her body, numbness and tingling and progressing memory loss and global cognitive dysfunction. She has had numerous spinal taps, ER visits and has seen more doctors than she can keep track of. Her neurological exam is extremely abnormal. There is severe weakness of the left side of her body- upper and lower extremities. Her diagnosis: Post-Lyme. She did receive of month of doxycycline and was beginning to feel better. After it was stopped the rug was pulled out from under her. Everything returned- with a vengeance. Diagnosis: Post-Lyme. Again: there is nothing we can do. "More antibiotics just don't work"- her neurologist.
The IDSA is stacking the new Lyme panel, per the agreement with the Connecticut Attorney General: It has excluded doctors who have any experience treating Lyme patients.
The state of New York is questioning Clongen. "Why was an ELISA not done first?" We don't accept the results- send the blood to the CDC for confirmation.
Another documentary is in the works. Another celebrity has Lyme disease.
The more things change- the more they remain the same.