The following quotes are not verbatim. I took some poetic license. But they are pretty close.
"I am 16. My body is has numbness and sever shooting pains. It is getting worse. My joints and muscles hurt. I am dizzy. I passed out. The cardiologist did a million test and said I have a low blood pressure. He put me on medicine, an adrenal like hormone to raise my pressure. The neurologist spent 7 minutes with me. 'Sure its Lyme: not'. 'Everyone thinks they have Lyme these days. It must be the latest fad. The media has got people confused and misinformed'. He said I suffered with a psychological problem, anxiety. He was rude and offered nothing. He sent me back to my primary care doctor. My pediatrician had no idea what's wrong. I asked for a Lyme test. No. It's definitely not Lyme disease. Doctor can you help me?"
" I was bit by a tick 2 years ago. I had the classic bulls eye rash. The doctor put me on Doxycyline for three weeks. I still had a fever and flu like symptoms. The rash wasn't gone. He said that's all I can do for you. I saw three or more other doctors; can't really remember. I went to the ER three times. Lyme tests were done. They were always negative. My body is racked with pain. I have overwhelming fatigue. I have headaches and dizziness and no sense of balance. My memory is shot and getting worse. I have had three spinal taps. The first two were normal. The third time they said I had meningitis, but it wasn't due to Lyme. Along the way I received two more three week treatments with Doxycyline. The same line was repeated: 'That's all we can do for you. Sorry'. Someone said it can't be Lyme because you would have been dead by now. The Doxy didn't work at all. I haven't been able to work. Money is tight. We called three Lyme clinics; they wanted $3,000.00 dollars up front to see me and send blood work off to California. I heard you might be able to help me..."'
" He just got out of the hospital; a big fancy University hospital. Docs there couldn't figure it out. He suddenly became weak and passed. He was confused. It has been going on for years. The spinal fluid was sent for Lyme antibodies. It showed some bands: IgM 23, IgG 39 and 41. Not enough to call it Lyme. Nonspecific results. He is an engineer, was brilliant. His memory, concentration and thinking is deteriorating. His body hurts. His joints swell. He has numbness and tingling. The headaches are getting worse. He is getting weaker and drops things. His balance is way off: he falls. He has trouble swallowing. They say its not Lyme. They are trying to figure it out. They think it might be an inherited nervous system disorder or a complication of cancer. They checked for AIDS. It was negative. I asked if they were sure it wasn't Lyme? They copped an attitude and looked at me like I was crazy. OK, they gave in and decided to humor the neurotic wife. They gave him some oral Doxycycline. It seems to have helped a little! My husband is an avid outdoors man: loves to camp and go fly fishing. He has had some tick bites over the years: no rashes that we know of. What do you think. Is there any hope? I am worried that he is dying."