tag:blogger.com,1999:blog-5694894153899281485.post8768875694091468078..comments2024-03-09T08:14:49.856-08:00Comments on LymeMD: Neuroborreliosis is driving me crazy!Lyme report: Montgomery County, MDhttp://www.blogger.com/profile/11035327980787631502noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-5694894153899281485.post-54794804866377441992014-02-12T06:32:54.223-08:002014-02-12T06:32:54.223-08:00FEB2014
Variability in insurance coverage conti...FEB2014<br /> Variability in insurance coverage continues. Those that are popular from Dr.'s point of view may be TERRIBLE from a Nerroboriollis patient point of view. All the "Blue-" ones are bad news; while UnitedHealthCare supplemental covers extremely well. - Have had 14 weeks IV Roceph no problem; which is a good start.Tatter Saladhttps://www.blogger.com/profile/14399411206212066160noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-39829939838956932672012-12-14T23:17:53.529-08:002012-12-14T23:17:53.529-08:00The combination of antibiotics IS a scientific met...The combination of antibiotics IS a scientific method and is also very logical.<br />It is also a way how to prevent development of antibiotic resistance.<br /><br />I think it was first used with chloramphenicol, which extremely efficiently breaks some paths in the bacterial development cycle, but in combination with another antibiotic disabling another bacterial functions the effect was still way better.<br /><br />Just an example from microbiology for 2nd year (technical university).Mario.https://www.blogger.com/profile/08444637510336186696noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-73592625652767195742010-09-20T01:41:37.943-07:002010-09-20T01:41:37.943-07:00After years of dealing with neuro-like chronic Lym...After years of dealing with neuro-like chronic Lyme symptoms (word loss, general visual darkening, memory loss, word substitution, vibrating muscles, etc) I found that if I eliminate gluten and dairy from my diet, the symptoms are greatly decreased. Are there any other foods that cause this particular inflammation that should be avoided?Unknownhttps://www.blogger.com/profile/09087404339564392269noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-33570546111945167182008-11-12T21:36:00.000-08:002008-11-12T21:36:00.000-08:00After ordering and reviewing hundreds of CD57 leve...After ordering and reviewing hundreds of CD57 levels I have discovered that this test is not very useful. Many things affect this parameter.<BR/><BR/>C3a and C4a are markers of inflammation. They are more sensitive than sed rate or CRP. They may be helpful in evaluating the degree of inflammation. They also have limited clinical value.<BR/><BR/>The most important gauge of disease activity is symptoms and associated physical findings.Lyme report: Montgomery County, MDhttps://www.blogger.com/profile/11035327980787631502noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-70856835205398478742008-10-27T20:34:00.000-07:002008-10-27T20:34:00.000-07:00I have a CD 57 and just started tx after 8 yrs of ...I have a CD 57 and just started tx after 8 yrs of undiagnosed lyme. ALso, just found out I passed it on to my 2, 5 and 7 yr old kiddos since I didn't know why I was so sick all this time after 18 specialists and dx with lupus, mixed connective tissue disease and sclero-derma.<BR/>I'm on ceftin, doxy ND RIFAMPIN AND CAN'T BELIEVE how much better i feel.<BR/>Question: what do you think about C3A and C4A in relation to Cd 57?<BR/>I would like to get the C 3-4A done but I don't know wht to expect.<BR/>I don't think I had those disorders i was dx with as it never really fit but i had the antibodies of all of them but negative ANA and c-reactive.<BR/>I have 7 bands for current infection meeting CDC criteria.<BR/>ow reliable is CD 57 to measure progress?<BR/>My daughter's Cd 57 is 18 and also has 7 + bands with ehrichionosis.<BR/>Any input as to when to get another Cd 57 for tx progress? and if you have a preference for cd 57 or c 3-4a? My hubby is also positive with 4 bands, his cd 57 is 185! but feels very fatigue all the time...<BR/>Thank you. :)Unknownhttps://www.blogger.com/profile/03139846555832900557noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-50320128378268646652008-08-18T18:24:00.000-07:002008-08-18T18:24:00.000-07:00CSF is as good as serum. Many researchers, includi...CSF is as good as serum. Many researchers, including those at Columbia do CSF C6 peptide index as well. The 23 band is very specific. It reacts to Osp C. The 39 band is also specific. It is hard to get positive culture or PCR of CSF. Lyme can do everything that MS does. Some think that a lot of MS is caused by Lyme. Do some research on this. Some people with brain involvement respond better to oral antibiotics than might be anticipated. Everyone reacts differently. Predisone makes everything better for a while. Lyme related MS might have a large autoimmune component. In a case of molecular mimicry antibodies directed against Lyme might also react with neural tissue. MS seems to be triggered by a wide range of microbes. Look up Weldon's work on MS and Chlamydia pneumonia. The most widely used MS drugs, alpha and beta interferon are known for their anti-viral properties. Patients treated for Lyme have had MS go into remission. Even WMD on MRI scans has improved, or at least stabilized. Sorry to be negative but "Big specialists" are the last ones who will buy any of this. You need an agressive LLMD. I won't give my name but can suggest Jemsek and Stricker. No, they don't take insurance and charge a mint. Call ILADS again. Incidentally, there are better oral therapies than doxcy.Lyme report: Montgomery County, MDhttps://www.blogger.com/profile/11035327980787631502noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-82781415582545393372008-08-15T07:15:00.000-07:002008-08-15T07:15:00.000-07:00Thanks- just having someone listen and not think y...Thanks- just having someone listen and not think you are nuts helps. Hard to be a doc and watch it all happening and be helpless to do anything. LDA gave me three names- two insurance won't cover, one insurance would cover has the unworking number. ILADS has not returned my calls. In my husbands case, it is likely not to be all Lyme. Long standing MS like bouts of lethargy, optic and neuro signs since twentys- but not frequent and normal inbetween. Rest of badness came in last 6 years with typical Lymes signs. Underlying neuro stuff dramatically improves with Pred even now but then encephalopathy signs kick in in a week. Thats scary isn't it- Pred and Lymes. The things that get done sometimes. Question for you- can you have Lymes IgG/M in csf and not have Lymes? IgG bands 58, 39, 18 positive and Igm band 23 positive. Again, this is csf not serum. Can't find guidelines for interpretation of csf. Second question, do chronic lymes folks with brain involvement ever get better temporarily with oral antibiotics? I mean can you hold it at bay and clear up thinking with oral doxy or something to keep someone able to work while waiting on other tests. I suspect you guys have had to treat people without insurance orally even when you wanted to do differently. What is the range of responses? I have a neuro who is willing to go oral while big specialists get their act together. This neuro doesn't ever treat Lymes disease and doesn't know much about it.mean can you hold it at bay and clear up thinking with oral doxy or something to keep someone able to work while waiting on other tests. I suspect you guys have had to treat people without insurance orally even when you wanted to do differently. What is the range of responses? I have a neuro who is willing to go oral while big specialists get their act together. This neuro doesn't ever treat Lymes disease and doesn't know much about it.dogdochttps://www.blogger.com/profile/16096011385493826813noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-24844669029060804092008-06-09T07:10:00.000-07:002008-06-09T07:10:00.000-07:00Many Lyme patients are frustrated and seek help in...Many Lyme patients are frustrated and seek help in many corners. Most doctors who bill themselves as Lyme specialist rely heavily on alternative treatments. When you are desparate you will try anything. Perhaps some herbal treatments work. This is not my experience.Lyme report: Montgomery County, MDhttps://www.blogger.com/profile/11035327980787631502noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-50486240080157772152008-06-08T20:22:00.000-07:002008-06-08T20:22:00.000-07:00Why did he go to a doctor for alternative treatmen...Why did he go to a doctor for alternative treatment? Was he still having symptoms when he left your practice? Do you find any alternative treatments effective?Michelehttps://www.blogger.com/profile/12480332174441696856noreply@blogger.com