tag:blogger.com,1999:blog-5694894153899281485.post5268237894635226181..comments2024-03-09T08:14:49.856-08:00Comments on LymeMD: IcemanLyme report: Montgomery County, MDhttp://www.blogger.com/profile/11035327980787631502noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5694894153899281485.post-62292339704666388742011-11-22T05:47:36.604-08:002011-11-22T05:47:36.604-08:00Thanks for your blog, it's so... sane... I am ...Thanks for your blog, it's so... sane... I am from Australia, reputedly a 'place with no Lyme'... Not true based on me and some fellow travelers (see http://www.karlmcmanusfoundation.org.au/). One of the complicating factors seems to be that our labs test on IDSA/US standards, whereas we think we probably have our own (fairly neuro) strain going on that doesn't come up. I miraculously have a positive pcr from a local (but unaccredited) lab and a dr willing to treat on that basis. No witchhunts yet, and our Medicare system covers quite a bit... Although the doc risks monitoring if they prescribe unusual things... Two things: Firstly, your blog has opened my mind and been my textbook; than you. secondly, I wonder if you would prescribe iv or orals to someone in my situation. I am a bit Iike one of your case studies, I look better than I feel. I'm 36. I had acute 'viral encephalitis' at 14. A year later I got pins and needles and numbness that went on. If i was cognitively impared or had personality changes, i didn't know it, but i did have back aches and foot pain and exhaustion. at 23 I saw a neuro who found facial asymmetry, Babinski sign and some other odd reflexes, white spots on MRI,equivocal nerve conduction studies but not enough to <br />diagnose ms. I decided avoiding doctors was the best strategy. Raynauds (dx by a friend who is a psychiatrist - "wow, I had only seen that in a textbook") followed, <br />otherwise a period of wellness except the feet and some anxiety. I decided to seek an ADD diagnosis and treatment because I wanted to do a doctorate and couldn't manage the proposal, let alone the thesis. My father and brother have add, so getting dx wasn't a problem, but the drugs didn't work. Then some neck spasms for a bit. Lots of hayfever that went away when i quit eating gluten. I then quit a stressful job because it was "getting to me" and bam - first off horrible throat spasms and swallowing problems, rib, neck and back pain, more foot and joint pain. Anxiety. Mould in the house was a problem, I moved out, got renovations and detoxed. Things improved but not all the <br />way... And a month of rifampin and mino (prescribed for something unrelated) sent me close to the edge of a nervous breakdown and now I have burning mouth syndrome and a valium habit for the throat spasm. I have vit d reversal, low iodine, magnesium, b12 and body temp. Pins and needles, numbness and burning in hands, neck pain, occasional wobbly legs and shaky hands. I drop stuff too. My memory is shot, but it might be the Valium. I spend a lot of money a the physio and massager for neck pain and back.<br />Sorry if this is too much info - just one question... Do I need iv rocephan or will oral abx do? I'm worried about <br />neuro stuff, but iv hard to get here and am worried about associated risks. Thanks lymemd, fb.funnybug88https://www.blogger.com/profile/14578752985637536531noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-22729323113983936832011-11-20T09:21:56.949-08:002011-11-20T09:21:56.949-08:00Wondering if there is some way to read your blog w...Wondering if there is some way to read your blog without the dots. <br /><br />My vision struggles as it is. The dots make it less lyme friendly to read.KAM's Bloghttps://www.blogger.com/profile/12124804751121728953noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-60457284164457010312011-11-15T07:26:01.021-08:002011-11-15T07:26:01.021-08:00Dear Sta12s,
I'm a new lyme patient who has a...Dear Sta12s,<br /><br />I'm a new lyme patient who has also been reading this blog to check on medication information. Please, please hang in there. From everything I've heard, and everyone I've talked to, it can take a long time, and multiple approaches, and of course it helps tremendously to get to a doctor, but there is hope for you! I'm impressed you are even able to travel to a third world country! There is no way I would be able to do that right now. I would be too miserable.<br /><br />First I was diagnosed with an anxiety disorder, then I thought I was developing schizophrenia when I began to have hallucinations, then I started losing my balance and my doctors thought I had MS, then I had heart palpitations and they were certain I had mitral valve prolapse or heart disease. I kept saying, "I had this rash. I had this strange, strange rash before all this started." They totally missed the ball, and now I'm crawling out of this hole. But you're not alone. Others are with you!!<br /><br />Xo,<br />JessicaJessicahttps://www.blogger.com/profile/10655405960367324171noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-87419948504544795482011-11-15T05:50:12.821-08:002011-11-15T05:50:12.821-08:00Thanks for the post doc, and thanks for writing ag...Thanks for the post doc, and thanks for writing again. After running out of antibiotics (long story), I've been suffering as I'm waiting to get back to the states. I read your story about the young girl who is doing well after IV ABX therapy -- well done! I had hoped that maybe my symptoms would not return, but I was not fortunate.<br /><br />After a few months off my ABX, the symptoms have started to creep back. Worst of all, I'm stuck in a third world country for the next 3 weeks. It's funny how the location of the infection and strain of bacteria play such a crucial role in the treatment and symptoms displayed. I've been trying to reach out to anyone here to knows about Lyme, but my resources are few and far in between. The symptoms are enough to make me want to throw in the towel some days, and I don't know what keeps me going down here. <br /><br />Again, thanks for the reminder that even though I'm isolated out here, there are others in the same position. Have a great one, doc :)Anonymoushttps://www.blogger.com/profile/01795746102592840371noreply@blogger.com