tag:blogger.com,1999:blog-5694894153899281485.post5764681664149156120..comments2024-03-09T08:14:49.856-08:00Comments on LymeMD: MCAS, mast cell activtion syndrome, nuts and boltsLyme report: Montgomery County, MDhttp://www.blogger.com/profile/11035327980787631502noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5694894153899281485.post-59411306997708030382018-04-28T17:49:08.721-07:002018-04-28T17:49:08.721-07:00Since it is hard to find doctors to treat SIBO, Ma...Since it is hard to find doctors to treat SIBO, Mast cell activation, and lyme, the poor patients have to try and figure out some of this for themselves. Because one doctor is seldom going to treat them all, or understand the connections. My impression, maybe wrong, is that the nervous system infection of lyme can affect digestion and motility, producing SIBO. Then since there are many mast cells in the GI tract, they are activated. In theory, treating the lyme ought to make the rest of it better. Those who do a lot of SIBO treatment, mostly naturopaths and lesser numbers of medical doctors say that only a third of patients are cured of this. Probably because the underlying cause is still there? And lyme is only one of the possible underlying causes. But if it is found in a lyme patient, along with mast cell activation, it would all be related in most cases. Just trying to understand this puzzle.lymiehttps://www.blogger.com/profile/00123316749536517739noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-15164339909045675812018-03-06T15:41:11.998-08:002018-03-06T15:41:11.998-08:00OK. Acid blockade can be a problem. Each case is d...OK. Acid blockade can be a problem. Each case is different. Proton pump inhibitors like Prilosec are of greater concern. Reduction of stomach acid also increases C. diff risk. SIBO is treated with specific meds, probiotics and ?glutamine. Antibiotics may need to be placed on hold. Certain antibiotics may treat Lyme and SIBO. <br /><br />Some people want to blame Lyme for everything and some people want to blame MCAS. SIBO has immune system ramifications but I don't see a direct MCAS connection. <br /><br />Patients: please don't be your own doctor. Be an advocate for yourself. Have informed conversations with a doctor who will listen and work with you. <br />Lyme report: Montgomery County, MDhttps://www.blogger.com/profile/11035327980787631502noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-82946398077005594232018-02-17T19:08:06.630-08:002018-02-17T19:08:06.630-08:00Very interesting. Although I have had lyme a long...Very interesting. Although I have had lyme a long time, it has only been in the last two years that MCAS and histamine problems became a problem and caused me to undertake a crash course in it. What is still a puzzle is in the situation where SIBO is present, if it is caused by MCAS, then is it even curable so normal digestion can take place? Apparently for many people SIBO is chronic too. Do we have a chronic infection bringing on a chronic mast cell syndrome which then produces chronic SIBO and a host of other symptoms, including some dangerous heart related ones? <br /><br />As far as MCAS treatment is concerned, if you reduce the stomach acid with H2 blockers, then SIBO may worsen. This seems to be puzzle wrapped in an enigma, and one so complicated that mainstream doctors are apt to steer clear or do nothing but a lot of expensive testing with very little treatment resulting from it.<br /><br />Will we ever get out from under this increasing pile of problems? Like dominoes, one falls and then more fall, triggered by the previous ones. It is mind boggling to try to figure out a solution.lymiehttps://www.blogger.com/profile/00123316749536517739noreply@blogger.com