tag:blogger.com,1999:blog-5694894153899281485.post5507399598835920707..comments2024-03-09T08:14:49.856-08:00Comments on LymeMD: What is a Herxheimer or Herx reaction?Lyme report: Montgomery County, MDhttp://www.blogger.com/profile/11035327980787631502noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5694894153899281485.post-86025111574400629772015-07-31T14:12:01.778-07:002015-07-31T14:12:01.778-07:00I have had several people ask me how to know if it...I have had several people ask me how to know if it was just lymes symptoms or an actual herx.....At first, it was hard for me to tell a herx from actual lyme symptoms....Like wild Dingo said, after it moves to the flu stage, and I make it through that ( ugh), my symptoms start to leave and I start to feel good for maybe 2 or 3 weeks.........Usually after this 2 or 3 week feel good period, then I start hexing again...This is crazzzzy stuff....DrJoehttps://www.blogger.com/profile/17664838475550356776noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-74150373815931011232015-07-19T11:49:54.901-07:002015-07-19T11:49:54.901-07:00This is probably the BEST description of Herxing I...This is probably the BEST description of Herxing I've found. People say "symtoms get worse" but my symmptoms are not necessarily the same as my herx. My herxes tend to be just like you describe, almost flu like: chills, fever, extreme fatigue. On the other hand, whenever I was on a powerful IV abx, it exaggerated my neuro-cog stuff FIRST (tremors/ticks, memory, thinking clearly) THEN it would move to the chills/fever/extreme fatigue. But rarely does it do anything to my joint issues which just seemed to have improved over the 2 years i've been treating this. Somedays they stiffer than others but not nearly as bad as they were right before I started treatment. <br /><br />anyway... I always seem a little relieved after the chills/fever thing but the fatigue always hangs on for a while. <br /><br />Thanks for your blog! :) Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-83479125512407031612014-01-25T19:55:40.454-08:002014-01-25T19:55:40.454-08:00I am wondering how treatment for Chronic Lyme and ...I am wondering how treatment for Chronic Lyme and associated dystonia is handled? My daughter is being brought home from a hospital where Lyme is not recognized and she is severely compromised by her dystonia which has left her unable to walk or speak. She will be seeing a LLMD for treatment but I have been reading about herxing and I am really scared. Is there anyone out there who had a similar problem and is now better?Mom on a missionhttps://www.blogger.com/profile/07316721153081577972noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-73088049547414720302011-07-23T07:16:09.944-07:002011-07-23T07:16:09.944-07:00I am one where my doctor is going slowly - if not ...I am one where my doctor is going slowly - if not - I would be in the hospital where they would deem Chronic Lyme does not exist and discontinue my treatment. Since those of us with Chronic Lyme can be super hypersensitive to medications, I believe part of my reactions were a sensitivity to the antibiotic. Since changing to a different one - still going slowly - I will most likely have many herx reactions as each dose goes higher, but I am getting the herx reactions so something beneficial is happening. The patient has to be able to withstand treatments or they will be most likely abandoned benefiting no one. <br />Thanks for all the wonderful information here :-)Mrs.Chicken Ladyhttps://www.blogger.com/profile/05428882488634246945noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-10736675170137318342009-07-23T20:48:48.881-07:002009-07-23T20:48:48.881-07:00I have experienced many Herxheimer reactions, but ...I have experienced many Herxheimer reactions, but I am curious about the time frame you specify? 3-4 weeks?<br /><br />In my case there has always been constant discomfort for weeks on end that could match this description, but with the occasional "storm" where symptoms go through the roof for just a few hours, or max 2-3 days. <br /><br />I was under the impression that it is this "peak" that is referred to as a Herxheimer reaction in the true sense of the word?glytzhkofhttps://www.blogger.com/profile/04209210441276934575noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-31567885910081654852008-11-09T05:24:00.000-08:002008-11-09T05:24:00.000-08:00I have seen the Herxheimer reaction two different...I have seen the Herxheimer reaction two different times in my husband while being treated for Lyme disease. Once when he was diagnosed with late stage lyme and then again when he began treatment after a serious and then again when he began treatment after he came out of the hospital 4 or 5 months later. The exact same flu-like symtoms occurred. I believe that this shows some truth that lyme disease is a long term illness. Western Blot test also proved positive.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-16071321813347168262008-10-13T18:51:00.000-07:002008-10-13T18:51:00.000-07:00Cpn is hard to diagnose. PCR is not useful because...Cpn is hard to diagnose. PCR is not useful because it is intracellular like other L-forms and therefore not found in fluid compartments. Most frequently Cpn is suggested when IgG titers are 1:512 or 1:1024. It is usually present in concert with other L-form bacteria like Mycoplasmas and Lyme. Porphyria is a very rare inherited disorder. Physicians learn about this disease which can mimic many illnesses. It is a rare disease. I have not seen a case in 25 years of practice. I have not seen Cpn associated with a Herx which is unusual. Psych Herxs can occur with Lyme and other pathogens. I suspect the treatment is the same as that for Herx reactions in general. IV fluids may help. Steroids may help. Holding antibotics and then gradually ramping up the dose may work. Stratton seems to believe that Cpn acts by itself. I see it as part of a greater polymicrobial disease. I don't think anti-oxidants, vitamins and other recommended therapies are effective. There is an exception. Rarely I use high doses of vit D short term as a steroid like molecule.Lyme report: Montgomery County, MDhttps://www.blogger.com/profile/11035327980787631502noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-28132107321729040092008-09-29T11:09:00.000-07:002008-09-29T11:09:00.000-07:00What do you make of Dr. Stratton's explanation of ...What do you make of Dr. Stratton's explanation of obligatory secondary porphyria with Cpn die-off? In the online Cpn community (much info at cpnhelp.org), porphyria is considered to be just as important and prevalent (and even more of a danger) in treating Cpn as endotoxin reactions are. Patients desperately take measures to keep secondary porphyria in check as it is horrible (especially the psych symptoms) and can be fatal. Testing for porphyrins is reportedly difficult. <BR/>How do you deal with this in your patients with Cpn?consiliencehttps://www.blogger.com/profile/11969288737486443058noreply@blogger.com