tag:blogger.com,1999:blog-5694894153899281485.post1118414478819366506..comments2024-03-09T08:14:49.856-08:00Comments on LymeMD: Bait and SwitchLyme report: Montgomery County, MDhttp://www.blogger.com/profile/11035327980787631502noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-5694894153899281485.post-30394904745861606052012-05-15T17:07:42.084-07:002012-05-15T17:07:42.084-07:00I liked what that Harvard guy said at the NAS IOM ...I liked what that Harvard guy said at the NAS IOM BPH, "...progress is made one death at a time..." as he looked at his colleages.worriedmomhttps://www.blogger.com/profile/15793273940892928730noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-39079992200261221952012-04-30T18:30:13.527-07:002012-04-30T18:30:13.527-07:00Hi Doc,
Was wondering if the book covered polymor...Hi Doc,<br /><br />Was wondering if the book covered polymorphisms? There is a new study out that suggests single nucleotide polymorphisms can contribute to the inflammatory response in some patients:<br /><br />http://onlinelibrary.wiley.com/doi/10.1002/art.34383/abstract;jsessionid=BBF17E37FF6F3ADDDD23F758DEC3EDA2.d02t02?userIsAuthenticated=false&deniedAccessCustomisedMessage=<br /><br />Genetic screening for Lyme susceptibility -- an intriguing idea.<br /><br />Sincerely, your fan in Grenada ;)Anonymoushttps://www.blogger.com/profile/01795746102592840371noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-4083457409006497022012-04-18T12:01:08.610-07:002012-04-18T12:01:08.610-07:00Hello!
I've been reading all of the archived ...Hello!<br /><br />I've been reading all of the archived blog posts and I find them to be really helpful! <br /><br />I am wondering if you've ever had a patient whose liver enzymes continuously rise with antibiotic use and do not respond to typical lowering methods such as NAC, ALA, glutathione IV, silymarin, detox teas etc. <br /><br />If so, what do you do for them? Particularly if their symptoms are fairly severe, herbs have not been very effective and they are co-infected. Are you able to find a way for them to continue taking antibiotics?Paced Runnerhttps://www.blogger.com/profile/15873164757633352278noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-91156321387374792132012-04-13T14:37:29.168-07:002012-04-13T14:37:29.168-07:00Thank you for this post. It is wonderful to see a...Thank you for this post. It is wonderful to see a doctor review some of the scientific material on Borrelia and then question the conclusions drawn.<br /><br />I have read a few of the more infamous studies and the conclusions don't always make sense with what the study actually did. I have trouble understanding how such "prestigious" researchers can follow such convoluted logic.<br /><br />Are there any studies in progress with the new advanced-labs culture test? Shouldn't this test be able to mostly solve the disputes about test interpretations and persistent infection?Pearlhttps://www.blogger.com/profile/04658899036165928153noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-25501468289495224742012-04-13T13:52:33.730-07:002012-04-13T13:52:33.730-07:00Did you hear that Time for Lyme changed its name t...Did you hear that Time for Lyme changed its name to Lyme Research Alliance, and will be the research arm for the newly formed TBDA!A Hudginshttps://www.blogger.com/profile/09831560120011460406noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-26494605407550281652012-04-12T14:46:41.621-07:002012-04-12T14:46:41.621-07:00I have read this book, having gotten it on loan fo...I have read this book, having gotten it on loan for about a week. Unfortunately I wasn't able to finish it and get through all of what I wanted, but based on what I did read, I agree with your assessment that the book's actual content supports a number of statements those of us who have persisting symptoms have made - yet the few injected comments relating to controversy and the politics of Lyme stood in opposition to the content.<br /><br />I think the reason this book is such a mixed bag is that there are multiple authors working on it, and they are paired up to write different sections of the book. The positions of the authors vary anywhere from open minded about what Borrelia <i>burgdorferi</i> is all about and admission of there being many unknowns - to being single-minded and judgmental about what this bacteria can and cannot do. <br /><br />Some of the authors are more closely affiliated with the IDSA guidelines group, and some of them are not. In some ways, that affiliation is even lose and difficult to judge in terms of researchers' positions... Dr. Stephen Barthold has had some affiliation with IDSA members; he was at Yale - and yet, he has at least appeared open-minded to the possibility of persistence of spirochetes via sequestration - and now, one can probably add persister cells as a possibility to that list via the Embers' Rhesus Monkey study.<br /><br />The lines drawn in the sand are not always so clear as they first appear. Sometimes they are muddy. I think the most important work that needs to be done is research by scientists who are open minded yet not gullible - people who are willing to discover the truth and not let bias from either side of the controversy cloud their judgment.<br /><br />I too am tired of those of us who are suffering patients and advocates being painted with the same brush as other groups which are viewed as "fringe". There are some folks within the Lyme community who seem to emphasize their conspiracy theories above anything else in the discussion about Lyme, and they are a minority - but a vocal minority which sometimes gets in the way of working towards any middle if one can be found.<br /><br />We need more balance. Does anyone know how to achieve it?Camp Otherhttps://www.blogger.com/profile/10224408965529778101noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-70917032507075032212012-04-09T20:56:17.729-07:002012-04-09T20:56:17.729-07:00Thank you for this blog! I would really like to c...Thank you for this blog! I would really like to consult with you- my email is chris@spiritcurrent.com. My story in Brief: I started having a very mysterious back pain a little over a year ago (Jan 2011) at the age of 29- I was very healthy, fit and had no specific injury that had caused it and nothing seemed to make it better. Then, after pains started to move all over my body- I went to the doctor and they ran a bunch of tests (not including lymes) and I tested positive for infectious Mono (April 2011). This became my diagnosis- although it really didn't explain the back pain. I've dealt with fatigue, acne, muscle aches, hair loss, insomnia, fevers, chills, weird nerve stuff, anxiety, spasms, brain fog and more- it's been a hard year. About a month ago my Dad suggested I get tested for lymes and once I started researching it I found out I had all the symptoms and it even explained the EBV reactivation (had mono as a kid). I tested equivocal on the CDC ELISA and Negative on the CDC Western Blot (IgG). I just got my IGENIX results back- Negative for IGG (with 18+ and 41+) and Positive for IgM (31+, 41+, 66+, 83-93+) I probably acquired this in California or maybe Minnesota- but I moved to Hawaii in the past year and there are no Lyme Literate MDs here. I have a very intelligent Lymes literate Naturopath, but she's not a specialist and doesn't have a ton of experience because there supposedly isn't any Lymes in Hawaii. Again, I'd really like to consult with you or have you consult with my Naturopath so she can treat me. I've been on Doxy for a couple weeks and I'm doing herbal support, but I need an expert. Also, if you don't consult- maybe you know of someone who does. Thanks again! Aloha.CJ Oceanhttps://www.blogger.com/profile/17972429646107062390noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-9822725680142356252012-04-09T05:43:51.444-07:002012-04-09T05:43:51.444-07:00A common tact in politcs is to produce vast amount...A common tact in politcs is to produce vast amount of 'established facts' then to give a conclusion completely unrelated to the 'facts'. Because it is a rare individual that will read the entire text and remember enough of it to refute the conclusion.<br />If it is written, it must be true mentality takes over. The overser of this book either didn't have a clue or didn't actually read all of it or both. <br />Even in the courtroom the jurors are often burried in 'facts' that muddy the truth so bad that an accurate conclusion cannot be reached. <br />It sounds like this bood is written so from the descritpion and where have we seen such tactics related to lyme? <br /> The question we need to ask ourselves is "WHY?" Not to beat up on the falsehoods given. Why is it so important for these political organizetions to hide what is going on? Until that is known, it will continue unchecked.doglickhttps://www.blogger.com/profile/15324749303819036074noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-71364435929065099982012-04-09T05:40:08.715-07:002012-04-09T05:40:08.715-07:00This comment has been removed by the author.doglickhttps://www.blogger.com/profile/15324749303819036074noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-87852102000427814342012-04-09T02:25:53.856-07:002012-04-09T02:25:53.856-07:00One of the authors of the antiscience paper has no...One of the authors of the antiscience paper has now retired Dr Sue O'Connell so here's hoping with all the changes things start moving in the right direction here in the UK at least the recent recognition of Tick Awareness week by HPA was a start details on LDA webiste of changes http://www.lymediseaseaction.org.uk/Joannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-50912582789365755952012-04-09T02:22:59.264-07:002012-04-09T02:22:59.264-07:00From the IDSA perspective but
The slide at 33:54 ...From the IDSA perspective but <br />The slide at 33:54 about the characteristics of Spirochetal diseases is especially interesting:<br /><br />- Spirochetal diseases are CHRONIC<br />- Spirochetal diseases can last over 30 years<br />- Spirochetal diseases have a Relapsing-Remitting pattern of clinical manifestations<br />- Spirochetal diseases are systemic<br /><br />http://www.youtube.com/watch?v=TR-aY_S8q2E&feature=youtu.beJoannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-4201173009560047452012-04-09T02:19:37.219-07:002012-04-09T02:19:37.219-07:00This comment has been removed by the author.Joannehttps://www.blogger.com/profile/12905137222286141548noreply@blogger.com