tag:blogger.com,1999:blog-5694894153899281485.post1069460042992060218..comments2024-03-09T08:14:49.856-08:00Comments on LymeMD: B12Lyme report: Montgomery County, MDhttp://www.blogger.com/profile/11035327980787631502noreply@blogger.comBlogger41125tag:blogger.com,1999:blog-5694894153899281485.post-52743083979096183632011-04-28T09:42:42.803-07:002011-04-28T09:42:42.803-07:00Hi all !
I been living all those lyme symptoms for...Hi all !<br />I been living all those lyme symptoms for years. By the way this illness is not taken seriously by french doctors...<br />So I'm looking for a specialist in Europe (France -Switzerland - germany).<br />Thanks for your help.<br />Regards<br />jacquesmk2@hotmail.frJacquesmk2https://www.blogger.com/profile/06382917363309878282noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-45334796921768854262011-04-19T14:08:51.652-07:002011-04-19T14:08:51.652-07:00Dr. Jaller is a fucking idiotDr. Jaller is a fucking idiotAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-44160828070839692662011-04-08T10:42:40.684-07:002011-04-08T10:42:40.684-07:00Please come back and tell us how you are doing.Please come back and tell us how you are doing.Laurenhttps://www.blogger.com/profile/08225109314750142371noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-10017904116135735692011-03-23T07:54:50.909-07:002011-03-23T07:54:50.909-07:00Hello, I had the B12 shots and did not see any dif...Hello, I had the B12 shots and did not see any difference (I actually thought they made me a bit aggressive, is this possible? BTW, my doc ordered for me and it was about 70$ for two months pre-filled needles supply). I am now taking Royal Jelly and although there is no real literature available to substantiate the claims of Royal Jelly benefits, I have read it is quite loaded in different Vit Bs and I think it does me well. Just throwing this out there, to see if anyone has also a good experience with this, or whether you have heard about it. Thanks!!!Malinche Denizhttps://www.blogger.com/profile/01990869730583709899noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-16006637094949375382011-02-11T23:36:53.017-08:002011-02-11T23:36:53.017-08:00I miss your blogging as well!! Hope things are go...I miss your blogging as well!! Hope things are going well.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-25400964227571540662010-12-29T02:10:23.062-08:002010-12-29T02:10:23.062-08:00Miss your blog. Hope you and your people have a g...Miss your blog. Hope you and your people have a great new Year. Me? doing good thanks to IVERMECTINA drops! <br />Thanks!<br />M.J.MJhttps://www.blogger.com/profile/16614021020877246061noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-32868852321362202842010-12-07T17:13:12.250-08:002010-12-07T17:13:12.250-08:00Hi Dr. J-- I'm glad I tuned in. Very impressiv...Hi Dr. J-- I'm glad I tuned in. Very impressive writing skills, says this journalism grad and apparent Lymie.Gina M Smithhttps://www.blogger.com/profile/02153527688211264822noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-53683849032359281332010-11-27T16:20:57.368-08:002010-11-27T16:20:57.368-08:00At one lecture Dr. Burrascano said that B12 in the...At one lecture Dr. Burrascano said that B12 in the form of methylcobalamine injections can move metals to the brain. Just something to be aware of.troutfarmhttps://www.blogger.com/profile/04320146452935421668noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-82347525363212057422010-10-17T09:06:26.202-07:002010-10-17T09:06:26.202-07:00I have to speak up here. LymeMD was doctor number...I have to speak up here. LymeMD was doctor number 23 for me, and the first one who finally figured out what was wrong with me. Since I started seeing him, I went from almost totally disabled to almost totally well (it's taken about 10 months so far). No one is perfect, and he can seem scattered at times, but he cared enough to take my symptoms seriously and he is the ONLY doctor who has helped me. Thanks to LymeMD, I have gotten my life back. I don't imagine I am cured of this chronic disease, but I am living a pretty normal life right now and that seems like a miracle after all the months of agony. Thank you Dr.twiceshyhttps://www.blogger.com/profile/05707141036221050888noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-55703665077377228672010-09-28T09:33:56.755-07:002010-09-28T09:33:56.755-07:00So everyone give this doc a break. He may be havin...So everyone give this doc a break. He may be having his own health problems at this time. At least he started this blog. At least he does not turn you away. He tries and he does care. He is very intellegent and his mind races as his thoughts seem to be faster than he can speak. Just lighten up.Unknownhttps://www.blogger.com/profile/09379385820073294669noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-26624326326217711702010-09-24T17:11:05.739-07:002010-09-24T17:11:05.739-07:00Hi, I see it's been a while since you've p...Hi, I see it's been a while since you've posted. I hope you are still checking your comments. What about really high B12 levels? My 3 sons have B12 levels in the 2-3thousand range! never been supplemented either. No one can tell me why. Their folate is also high. Could it actually mean a deficiency? help! Also, I am suspected to have lyme. Just got my results back from clongen and my igg was neg but Igm was positive. Im extremely symptomatic for lyme and have been for years now.Krystena Kaehttps://www.blogger.com/profile/08821151538890745501noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-20405555641510645002010-07-26T15:50:40.500-07:002010-07-26T15:50:40.500-07:00I am concerned that we have not heard from the doc...I am concerned that we have not heard from the doctor. Is anyone else concerned? I look often to read the next post because I think he is a physician who has been willing to write about his treatment of some patients and validate some of my own experiences. This is a very serious disease and I have suffered a lot.<br />Thanks in advance.Love blue waterhttps://www.blogger.com/profile/17337804834956066011noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-62297494979701640432010-07-23T01:41:46.795-07:002010-07-23T01:41:46.795-07:00Other research from Dr. Sapi, this time showing ho...Other research from Dr. Sapi, this time showing how two herbs, Samento and Banderol kill Borrelia in cystic form and in spirochette, but they have to complement their treatment with antibacterials anyways!! interesting! http://www.townsendletter.com/July2010/sapi0710.html<br /><br />To the person here against this Doctor I can tell the Lyme rage is for not following the treatment; better do what this Doctor recommended to you before you get dementia and loose your self. <br /><br />To the stupid hacker, bug off.<br /><br />To the ones trying to reach this Doctor look for the ILADS secretary, send her an email.<br /><br />To the Doctor, please write again,<br />we certainly miss your posts!!!<br />Errand thoughts? no way, errand us without your thoughts!!<br />Hoping you and all yours are okay!LYMEMJhttps://www.blogger.com/profile/16972611258779349240noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-2909798028852747182010-07-21T12:44:09.595-07:002010-07-21T12:44:09.595-07:00to: YankeesDWP
I'm sorry if you did not have ...to: YankeesDWP<br /><br />I'm sorry if you did not have a good experience with him, but first off, you should know better than to use his name..shame on you! Secondly, everyone has their own opinion and while you may not have liked him, many others do and have been helped by him. If you are going to throw comments out there, you should backup your comments with concrete reasons. His thoughts can be a bit scattered, but his mind is racing through information. If you had more than 1 visit with him, you'd realize that. He's highly intelligent and has a vast wealth of knowledge. <br />I travel from Georgia to see him and gladly do so. He's helped thousands of patients and he puts his license at risk everyday treating them.Ramilinhttps://www.blogger.com/profile/17307205494401044895noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-70802838434716561642010-07-11T20:14:30.267-07:002010-07-11T20:14:30.267-07:00Hello--
I have reason to believe I have lyme dise...Hello--<br /><br />I have reason to believe I have lyme disease. (Sorry, I don't really want to write an open comment about my health history).<br /><br />I live in the Germantown area. I'm hoping to be seen in your practice.<br /><br />Could you please email me your office contact information.<br /><br />Thank you.<br /><br />Caroline<br /><br />(carolinetheberge@yahoo.com)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-56451355489188041782010-07-07T19:36:08.522-07:002010-07-07T19:36:08.522-07:00Doc - what's your take on low Vitamin D levels...Doc - what's your take on low Vitamin D levels? Or Mecury levels? Been not doing to well with my current Lyme doc. By reading through you seem to have the most interest and care. Is there anyway to obtain an appt with you?rockydoghttps://www.blogger.com/profile/00081549411629158548noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-48731394904466868332010-06-22T09:08:49.517-07:002010-06-22T09:08:49.517-07:00how can i find you? i live near montgomery county ...how can i find you? i live near montgomery county and desperately need a lyme literate doc! please help!klentahttps://www.blogger.com/profile/02505547863905735425noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-86162036506951644492010-06-11T00:54:32.981-07:002010-06-11T00:54:32.981-07:00Got the Ivermectin drops in Colombia, South Americ...Got the Ivermectin drops in Colombia, South America. The version in the US is called "Stomectol" but comes in a box of 3 pills, not enough for a long term treatment. I guess killing the big bugs - parasites and even worms - has been definitive for starting a way to recovery; of course first having antibiotics and also Bactrim, Flagyl, Tinidazol; all the needed ones. But all those have to be guided by a knowledgeable doctor and with enough supervision. <br />The Bacteria Borrelia doesn't go away so easily and the treatment has to be very careful and exhaustive; the co-infections help the bacteria to survive in a better environment. <br /><br />Norway with Dr. Boronson say Flagyl kills the Borrelia in Cystic form - that is what his studies indicate or what I understood from it. Please read the research. I paste here a part: <br />'Staining with acridine orange (AO), dark field microscopy (DFM), and transmission electron microscopy (TEM) revealed that the contents of the cysts were degraded when the concentration of Metronidazole (MZ) was > or = MBC (minimal inhibitory concentration). Some cysts were also ruptured. When incubated with a sufficient concentration of MZ, core structures did not develop inside the cysts, and AO revealed less RNA in the cysts. Our observations may help efforts to treat resistant infections caused by B. burgdorferi with a combination of Metronidazole (MZ) and other antibiotics in order to eradicate both cystic and mobile forms of B. burgdorferi. http://www.ncbi.nlm.nih.gov/pubmed/10379684?dopt=Abstract<br />Brorson O, Brorson SH<br /><br />God bless Norway!LYMEMJhttps://www.blogger.com/profile/16972611258779349240noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-28567337618279944232010-06-11T00:23:57.538-07:002010-06-11T00:23:57.538-07:00Try contacting ILADS, ask to get info about the Do...Try contacting ILADS, ask to get info about the Doctor in LYMEMD; hope you get his help!<br />http://www.ilads.org/contact/contact_ilads.htmlLYMEMJhttps://www.blogger.com/profile/16972611258779349240noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-6116668207479660602010-06-08T04:28:29.684-07:002010-06-08T04:28:29.684-07:00please tell us how to find you, my child is sick a...please tell us how to find you, my child is sick am I am stranded in france where I can only receive homeopathic dosages of antibiotics (my dr prescribed only 200mg doxicillin a day). My whole family is sick and if we do come to USA we would probably have no health insurance but I am prepared to pay and to move anywhere to see them better.<br />Please answer me as I do not know who to turn to any more. greenhours@yahoo.frGHhttps://www.blogger.com/profile/03577693524404498717noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-4140581650244453902010-06-07T06:07:13.025-07:002010-06-07T06:07:13.025-07:00I'm wondering if you are open to working with ...I'm wondering if you are open to working with patients from other countries (Europe)? I have recently been diagnosed with Late stage Lyme (5 years). My doctor and I would be looking for a LLMD to work with us - by phone, email???<br /><br />If there is a possibility, maybe your surgery could contact me: mcevoyjennya@hotmail.com<br /><br />Thank you!Treyahttps://www.blogger.com/profile/09637433110038921079noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-75743627386706542192010-06-06T19:49:32.991-07:002010-06-06T19:49:32.991-07:00Josh, I'm not aware of tinidazole doing anythi...Josh, I'm not aware of tinidazole doing anything for Bab. I believe the metronidazole/tinidazole drugs hit both active and cyst forms of Bb, but no one knows for sure. There's some in vitro evidence, but it's hard to really measure something like cyst killing in vivo (in the body). I think that empirically experienced lyme docs find it to be helpful (ie, tolerable and helps folks get better). Iirc, LymeMD likes doxy + tin. I also don't think that any given ab targets specific body areas of pathology, other than needing drugs the cross the BBB for brain lyme involvement (which we all might have to varying degrees). If by narcolepsy meds you're referring to stimulants, I don't really know, but I get the sense that most folks with lyme fatigue aren't helped by any symptom directed med. And stuff like caffeine is to be avoided. Bug killing is what is needed. Of course, some of you might have XMRV and that's a whole other realm. It might be that a subset of lyme patients who do not get well on abx have X and might someday benefit from anti-retroviral meds. There's lots going on with that right now, but it's not available for prime time yet. Stay tuned, Google Judy Mikovits and talk with your lyme doc. Good luck. <br /><br />It's impossible to know what B12 will do for you, but it's easy to try. I personally got high serum levels using the sublingual methycobalamin lozenges from Life Extension. I can't tell that it did anything for me, but my version of lyme doesn't include fatigue. Lotsa variations on the theme.bluesdochttps://www.blogger.com/profile/17117370325452841803noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-43960799156819310002010-06-06T12:42:27.163-07:002010-06-06T12:42:27.163-07:00Bluesdoc:
Does tinidazole attack babesia cysts or ...Bluesdoc:<br />Does tinidazole attack babesia cysts or do cysts only form from borellia. I am going to see my lyme doctor and would like to bring some of these medications up to him because my heels, neck, and knees are the worst symptoms I have. Also what else works for feeling like I should sleep all of the time. Does Narcolepsy medication help, and does the active B12 work with excessive sleepiness.lymejoshhttps://www.blogger.com/profile/17723440246768995477noreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-64897031573785176842010-06-05T20:45:39.122-07:002010-06-05T20:45:39.122-07:00This comment has been removed by the author.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5694894153899281485.post-21515133092976899762010-06-05T20:05:09.846-07:002010-06-05T20:05:09.846-07:00RNFL, many people with late lyme tend to do much b...RNFL, many people with late lyme tend to do much better when given multiple high dose antibiotics at once. (Read Ginger Savely's chapter in the Insights book. Herxing can be very difficult, but those are the dues it takes to get to the other end of this. A month of doxy (assuming it's at least 400mg/d) is just an appetizer, though your response to it will help reinforce the diagnosis. To get well, expect to be on abx for many months, to years. If you get well sooner, that's great. But don't expect it. It's not a sprint, but a very long marathon. And yes, you can have this for a very long time before getting diagnosed. I was about 16 yrs into it (undiagnosed, and I'm a frickin' doc!!) when I completely fell apart. Now, after nearly 4 yrs of totally inadequate treatment (what I didn't realize and my lyme doc grossly underestimated), I'm getting well on mult abx, high dose (basically an ILADS/Burrascano approach). Everyone is different and that's why you need a real lyme doc to help steer the course. And, assuming you live in the northern hemisphere, watch out for sun exposure on doxy.bluesdochttps://www.blogger.com/profile/17117370325452841803noreply@blogger.com